The End. No this is
the beginning.
Around 2 and half years old we started the process of
identifying why Kylie’s speech and vocabulary was not at the level for her
age. What we thought then would be
speech therapy sessions and working on flash cards turned into finding out our
daughter was deaf and hard of hearing.
She has gone through more hearing tests than you and I have combined, CT
Scans, MRIs, ABRs, EKGs, Halter Monitors and therapy sessions. We tried hearing
aids in both ears and increased amplifications with not the results
needed. Keep in mind she did all of this
while remaining our Smiley Kylie.
We were referred to University of Miami and to look at
Cochlear implants as the next option.
Cochlear what? Although in the
beginning the question of why us, crossed our minds many times by this time in
the process we quickly embraced the angel we were blessed with raising on
earth. Months of testing ensued to see
if Kylie was a candidate for a cochlear implant and papers were prepared for
the insurance. More waiting, months of
waiting and several back and forth conversations between University of Miami
and our insurance and finally the approval for the cochlear implant for the
right side and surgery is scheduled. Surgery is completed Kylie is doing amazing
and we move forward.
But wait, like us doesn’t she need two ways to hear not just
one. More tests, more insurance back and
forth and that brings us to today, two years later!. Surgery day for cochlear implant number
2!
This is THE END of a process that started 4 years ago. Kylie now has the equipment she needs to succeed
in life. From this point forward we just
need to fine tune and update her implants and immerse her with language, therapy
and love to grow and “catch up” to the levels for her age. This is THE END of something we have spent so
much of our time on. This is the final
exhale, the END of the road, the END of the journey.
Although this is THE END, this is the beginning of a new
road and a new journey and one we are so grateful that she has the ability to
be on. We are truly blessed by the
amazing doctors, professionals, family and friends that have held our hands,
encouraged us, played a role and helped make this all happen for our little girl.
Now watch out world cause this one is going to take the
world by storm!
Here are some photos from today
Time for a funny photo with Grandpa and Grandma in the hospital parking lot at 5:30am
Kylie and Daddy
Hospital Gowns - What happened to the back??
Almost time to go back so let's do a funny photo or two
Transport can I get a quick ride to the Operating Room - Smiles and giggles included
We are out of surgery and resting
All she wanted was to wear
her cape on the way home. In my book SuperGirl is very fitting
Resting on the couch at home and hiding a smile










1 comments:
Thank you for sharing your blog with me, you have me in tears...happy tears. I feel so blessed to have met Supergirl this year. This is the beginning of amazing things for Kylie and your family. You are truly an inspiration to me as a mother! We are sending lots of prayers for a speedy recovery as Brianna is so excited to see Kylie and her princess ear back at school. Best wishes to you and your family!!
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